Peyronie’s disease

Living with Peyronie's disease

For many men with Peyronie's disease the impact goes beyond the physical symptoms and may affect their sexual, emotional and social wellbeing.1 Peyronie's disease can also affect the partners of men with the condition.

Australian men talking about Peyronie's disease have said that the condition can make them feel embarrassed, isolated, self-conscious, weak, and ‘less of a man.’6

‘I felt that I was defined by this disease, and I did not want at all to be associated with this type of disease... I could actually think of other diseases that I would want more than this disease.’ Justin A6

If you notice or feel that you are experiencing any of the issues below, please speak with your doctor, who will be able to help.

Physical changes

The most noticeable symptom of Peyronie's disease is a curve in the penis, especially during an erection.3

Peyronie's disease can also cause changes to the shape of the penis, including narrowing, indentation, and shortening.4

Physical changes

The degree of the curve during an erection can vary greatly among men with Peyronie’s disease. The curve may range from being barely noticeable to an angle greater than 90 degrees.

Sexual intercourse

Depending on the degree of curvature and the direction of the curvature, some men with Peyronie's disease may find it difficult to have sex, masturbate, or have sex in their preferred positions. In addition, it may be painful to have sex for both the male with Peyronie's disease and his partner due to the curve in the erect penis.

Peyronie's disease may also cause difficulties achieving or maintaining an erection, which may interfere with the ability to have sexual intercourse.

As a result of the sexual difficulties that may arise due to Peyronie's disease, this may lead to reduced sexual satisfaction for both the male with Peyronie's disease and his partner.

If you are concerned about your curved or bent penis during an erection and how it is affecting your sex life, the best thing to do is speak with your doctor who can help identify the cause and discuss how to best manage your Peyronie’s disease.

You might also find it helpful to discuss your concerns with your spouse or partner, if you have one. Letting your partner know what is bothering you may help move things in a positive direction for both of you.

Emotional health

Many men with Peyronie's disease feel a sense of shame and loss of self-esteem. Other men say they feel angry that it has happened to them.1,6

For some men, the symptoms of Peyronie's disease contribute to them becoming depressed. One study showed that nearly half of men diagnosed with Peyronie's disease suffered from clinical depression.7

If you have physical symptoms that are bothering you, particularly if they are causing you to feel anxious or depressed, it is important that you speak with a doctor, who will be able to help.

‘I was really afraid, because I didn’t know what was happening.’ John P6

Social changes

The physical symptoms of Peyronie's disease can cause men to avoid sex and other intimate situations, which can put pressure on existing relationships or pose barriers to forming new ones.1

Having Peyronie's disease can feel like a heavy burden, but feelings of embarrassment, shame, and other emotions may prevent men from opening up and talking to someone else about their worries, which can lead to a sense of isolation.1

Talking to a doctor, spouse, partner, family member or close friend about your Peyronie's disease can seem daunting and requires a lot of courage, but finding someone to open up to can provide support and ease the sense of isolation.

‘I constantly felt like I had to hide things. I constantly felt like I had this diseased secret that I could not tell anybody. I felt like I was walking around with, you know, some other disease… any other disease, like cancer or heart disease or whatever… yet nobody could see it and I couldn’t talk about it with anybody.’ Justin A6

©2016 Actelion Pharmaceuticals Australia Pty Ltd. Suite 6, 13B Narabang Way Belrose, NSW 2085. Ph. +612 9486 4600. Date of preparation: April 2016. XIA-2016-0072. ZEST/ATLSY010/0416